Emiliano Gael Cerezeda Ramirez is a 1 year and 8 months baby, from Valdivia, Chile.
1.5 years ago he was diagnoticated with a dessease called Spinal Muscular Atrofy type 1, is the most severe of his type and also cause a severe muscular degeneration.
Emiliano needs a medicine called Zolgensma, is a unique docis and that can save his life, if Zolgensma isn´t administrated ASAP he can desseace in any time.
Zolgensma´s costs is arround of USD$2,300,094. At this time, the only option is to aquire it outside Chile.
Is for this reason we need your help, Emiliano with your help will be able to live longer and with his loved family.
If you whant to make a donation, please follow this link
And Thanks for your support
As parents we start a campain on sotial media as a found rasing to help us to buy this medicine, here in Chile, the only way to aquire the medicine is as particular buyer. Is not covered on sotial health care, and the state doesn´t help us with that also.
This is a complex and distressing situation, because Emiliano gets worst every day, and the desease provoques an irreparable damage on his little body and organs.
Please, we need your help in an urgent way to save him. As a family, we are desesperated because we don´t know what else do te help him and save our son´s life